Self Determination, Decision Making and Social Functioning as a Prognostic Factor among Hepatitis ‘B’ and ‘C’ Patients

Main Article Content

Muhammad Waqas
Muhammad Luqman Khan
Muhammad Umar Saeed

Abstract

Background: Viral hepatitis, encompassing hepatitis B and C, remains a significant public health challenge globally, with a vast majority of those affected unaware of their infection status. The societal stigma and lack of awareness about these diseases impede early diagnosis and effective management, particularly in developing regions. Patient self-help groups and public health initiatives play a critical role in bridging the knowledge gap and facilitating access to care.


Objective: This study aimed to evaluate the impact of patient self-help groups in Punjab, Pakistan, on raising awareness and enhancing the management of hepatitis B and C. It sought to assess the effectiveness of awareness campaigns and the role of healthcare professionals in disease identification and management.


Methods: A mixed-methods approach was employed, incorporating both qualitative and quantitative data collection through surveys distributed among 150 participants, including 102 males and 48 females from rural and urban areas. The survey consisted of three parts: an evaluation of patient self-help groups, liver disease awareness campaigns, and public health initiatives' commitment against viral hepatitis. Data analysis was performed using SPSS version 25, focusing on the correlation between demographic variables, awareness levels, and the impact of educational campaigns.


Results: The findings revealed a significant correlation between awareness levels and participation in self-help groups (r=.564, p<.000). Urban participants showed slightly lower awareness scores (Mean=81.69, SD=14.00 for Total1; Mean=121.81, SD=19.52 for Total2) compared to rural participants (Mean=82.27, SD=12.10 for Total1; Mean=125.75, SD=17.73 for Total2). Gender analysis indicated higher awareness among females (Mean=83.56, SD=13.65 for Total1; Mean=125.60, SD=19.21 for Total2) than males (Mean=81.42, SD=12.11 for Total1; Mean=124.20, SD=17.89 for Total2). Despite the efforts of patient groups, a gap in healthcare professionals' knowledge about viral hepatitis was noted, with no specialized training programs available for general practitioners.


Conclusion: The study underscores the crucial role of patient self-help groups and targeted awareness campaigns in improving the management and awareness of hepatitis B and C in Punjab. However, the lack of knowledge among healthcare professionals about viral hepatitis highlights the need for comprehensive training programs. Enhancing public health strategies and educational initiatives could significantly contribute to early disease detection and management, reducing the burden of viral hepatitis.

Article Details

How to Cite
Waqas, M., Khan, M. L., & Saeed, M. U. (2024). Self Determination, Decision Making and Social Functioning as a Prognostic Factor among Hepatitis ‘B’ and ‘C’ Patients. Journal of Health and Rehabilitation Research, 4(1), 531–536. https://doi.org/10.61919/jhrr.v4i1.466
Section
Articles
Author Biographies

Muhammad Waqas, Faisalabad Medical University Faisalabad Pakistan.

Allied Hospital.

Muhammad Luqman Khan, Riphah International University Faisalabad Pakistan.

Associate Professor, Department of Psychology.

Muhammad Umar Saeed, Faisalabad Medical University Faisalabad Pakistan.

Allied Hospital.

References

Allaire M, Bruix J, Korenjak M, Manes S, Maravic Z, Reeves H, et al. What to do about hepatocellular carcinoma: Recommendations for health authorities: An International Liver Cancer Association Advocacy Document. JHEP Reports. 2022:100578.

Bang HJ, Shim HJ, Kim GR, Hwang JE, Bae WK, Chung IJ, et al. Geriatric functional assessment for decision-making on adjuvant chemotherapy in older colon cancer patients. The Korean Journal of Internal Medicine. 2022;37(3):660.

Drysdale K, Rance J, Cama E, Treloar C, Mao L. What is known about the care and support provided for an ageing population with lived experience of chronic viral hepatitis as they near end‐of‐life: A scoping review. Health & Social Care in the Community. 2022;30(6):e3775-e88.

Efficace F, Collins GS, Cottone F, Giesinger JM, Sommer K, Anota A, et al. Patient-reported outcomes as independent prognostic factors for survival in oncology: systematic review and meta-analysis. Value in Health. 2021;24(2):250-67.

Grønkjær LL, Lauridsen MM. Quality of life and unmet needs in patients with chronic liver disease: A mixed-method systematic review. JHEP Reports. 2021;3(6):100370.

Jung HJ, Park JY. Life-sustaining treatment in end-stage liver disease patients: patients’ decisions and results. The Korean Journal of Hospice and Palliative Care. 2020;23(2):85-92.

Leroy V, Chevaliez S, Decraecker M, Roulot D, Nana J, Asselah T, et al. Non-invasive diagnosis and follow-up of chronic infection with hepatitis B virus. Clinics and Research in Hepatology and Gastroenterology. 2022;46(8):101773.

Mahassadi AK, Team Machekam O, Attia AK. The Impact of Virologic Parameters and Liver Fibrosis on Health-Related Quality of Life in Black African Patients with Chronic Hepatitis B: Results from a High Endemic Area. Clinical and Experimental Gastroenterology. 2020:407-18.

Ng RT, Chew KS, Choong CL, Song ZL, Teh JKL, Koay ZL, et al. Etiology, outcome and prognostic indicators of acute liver failure in Asian children. Hepatology International. 2022;16(6):1390-7.

Reig M, Forner A, Rimola J, Ferrer-Fàbrega J, Burrel M, Garcia-Criado Á, et al. BCLC strategy for prognosis prediction and treatment recommendation: The 2022 update. Journal of hepatology. 2022;76(3):681-93.

Serper M, Parikh ND, Thiele G, Ovchinsky N, Mehta S, Kuo A, et al. Patient‐reported outcomes in HCC: a scoping review by the Practice Metrics Committee of the American Association for the Study of Liver Diseases. Hepatology. 2022;76(1):251-74.

Shi Y, Wang Y, Yang R, Zhang W, Zhang Y, Feng K, et al. Glycosylation-related molecular subtypes and risk score of hepatocellular carcinoma: Novel insights to clinical decision-making. Frontiers in Endocrinology. 2022;13:1090324.

Tohme S, Sanin GD, Patel V, Bress K, Ahmed N, Krane A, et al. Health-related quality of life as a prognostic factor in patients after resection of hepatic malignancies. Journal of Surgical Research. 2020;245:257-64.

Yozgat A, Can G, Can H, Ekmen N, Akyol T, Kasapoglu B, et al. Social stigmatization in Turkish patients with chronic hepatitis B and C. Gastroenterología y Hepatología. 2021;44(5):330-6.

You H, Wang F-S, Li T, Xu X, Sun Y, Nan Y, et al. Guidelines for the Prevention and Treatment of Chronic Hepatitis B (version 2022). Infectious Diseases & Immunity. 2023;3(04):145-62.

Yu L, Liu X, Wang X, Yan F, Wang P, Jiang Y, et al. TIGIT+ TIM-3+ NK cells are correlated with NK cell exhaustion and disease progression in patients with hepatitis B virus‑related hepatocellular carcinoma. Oncoimmunology. 2021;10(1):1942673.

Zhang Q, Zhong C, Cai S, Yu T, Xu X, Yin J. Risk factors associated with quality of life in patients with hepatitis B virus related cirrhosis. Frontiers in Psychology. 2022;12:770415.

Zhang T-T, Ye S-S, Liang J, Bai L. Prognostic value of non-invasive fibrosis indices post-curative resection in hepatitis-B-associated hepatocellular carcinoma patients. Experimental Biology and Medicine. 2020;245(8):703-10.

Zhou J, Zhou J, Feng Z, Feng L, Xiao L, Chen X, et al. Identifying the core residual symptom in patients with major depressive disorder using network analysis and illustrating its association with prognosis: A study based on the national cohorts in China. General Hospital Psychiatry. 2024.

Zou H, Li M, Lei Q, Luo Z, Xue Y, Yao D, et al. Economic burden and quality of life of hepatocellular carcinoma in greater China: A systematic review. Frontiers in Public Health. 2022;10:801981.