Parents And Physical Therapist Perspective On Physical Therapy Goals For Children With Cerebral Palsy

Main Article Content

Rahila Suleman
Ayesha Shaukat
Areej Tasnim
Rida Razaq Janjua
Irum Zahoor
Memoona Zaryab

Abstract

Background: The objective of this qualitative study was to provide a comprehensive review of the experiences and related factors of parents with children between the ages of three and six who are diagnosed with cerebral palsy. The research examined the perspectives of guardians about the physical and/or occupational therapy provided to their child at a rehabilitation center. The current body of rehabilitation literature places emphasis on prioritizing functional objectives for children with special needs, as well as using a collaborative approach to goal-setting that is rooted in the concepts of family-centered care delivery.


Objective: To find out parents' experiences with cerebral palsy (CP) child for goals and goal setting.


Methodology: A qualitative study was conducted with 10 parents of children with cerebral palsy at NIRM hospital Islamabad. An inductive thematic analysis was used to identify prominent themes.


Results: Three themes are revealed by analysis that represent goals useful for the parents and gave an insight into parents' experiences with processes of goal-setting in physical therapy: The themes acquired as per the data received through interview guide were as follows: 1) Physical changes of CP patient 2) Social changes (Community based) of CP patient.3) Family professional partnership 4) Therapists perspective for CP child.


Conclusion: Positive parental experiences with their child's intervention led to the following outcomes: more time spent with the child, a broader perspective, increased community involvement, the opportunity to share personal experiences with other parents, improved goal setting skills among parents, and the ability to track progress.


Furthermore, parents emphasize the necessity of developing trusting connections with their children in order to have open talks about the required amount of participation in goal setting, the family's values, and unique circumstances.

Article Details

How to Cite
Suleman, R., Shaukat, A., Tasnim, A., Janjua, R. R., Zahoor , I., & Zaryab, M. (2024). Parents And Physical Therapist Perspective On Physical Therapy Goals For Children With Cerebral Palsy. Journal of Health and Rehabilitation Research, 4(1), 285–290. https://doi.org/10.61919/jhrr.v4i1.400
Section
Articles
Author Biographies

Rahila Suleman, Margalla Institute of Health sciences Rawalpindi Pakistan.

Lecturer physiotherapy, Islamabad College of Physiotherapy.

Ayesha Shaukat, Margalla Institute of Health sciences Rawalpindi Pakistan.

Lecturer physiotherapy, Islamabad College of Physiotherapy.

Rida Razaq Janjua, Margalla Institute of Health sciences Rawalpindi Pakistan.

Lecturer physiotherapy, Islamabad College of Physiotherapy.

Irum Zahoor , Rawalpindi Institute of Cardiology Rawalpindi Pakistan.

Physical Therapist.

References

Omer A, Moghadam BA, Shadmehr A, Hafeez T, Azfar H, Arif M, et al. Effects of Kinesio Taping and Modified Constraint-Induced Movement Therapy on Upper Extremity Function, Quality of Life, and Spasticity in Individuals Recovering from Stroke. Journal of Health and Rehabilitation Research. 2024;4(1):167-72.

Tahir M, Tehzeeb K, Javaid F, Khan UA, Ayyaz A, Usama M. EFFECTS OF ROUTINE PHYSICAL THERAPY WITH AND WITHOUT HIGH INTENSITY INTERVAL TRAINING ON BALANCE, QUALITY OF LIFE AND FUNCTION IN PARKINSON’S DISEASE PATIENTS. Journal of Population Therapeutics and Clinical Pharmacology. 2023;30(19):483-90.

Safdar Z, Asghar M, Tahir M. Level of Quality of Life among Post Stroke Patients; A Cross Sectional Survey. Journal of Health and Rehabilitation Research. 2023;3(2):299-304.

Asghar M, Safdar Z, Tahir M. Quality of life and functional Outcomes among Burn Patients: A Cross Sectional Survey. Journal of Health and Rehabilitation Research. 2023;3(2):293-8.

Tahir M, Maqsood M, Azhar N, Safdar Z, Amin U, Waheed TS. Association of Knee Pain in Long Standing and Sitting among University Teachers: Association of Knee Pain in University Teachers. The Healer Journal of Physiotherapy and Rehabilitation Sciences. 2023;3(1):314-21.

Khan MT, Shareef F, Farooq U, Tahir A. Impact of Facility Characteristics on Patient Safety, Patient Experience, and Service Availability for Procedures in Hospitals. Pakistan Journal of Rehabilitation. 2022;11(1):136-44.

Makki ARK, Tahir M, Amin U, Tabassum MMB, Kamran M, Tahir F. Mechanism of Meniscal Injury and its Impact on Performance in Athletes: Meniscal Injury in Athletes. The Healer Journal of Physiotherapy and Rehabilitation Sciences. 2022;2(3):232-7.

Malik J, Farooq U, Tahir M, Ayyaz A, khalid Makki AR. Impact of Attending Online Classes on Mental Health Among University Students During COVID-19 Pandemic in Lahore: Impact of Online Classes in Covid-19. The Healer Journal of Physiotherapy and Rehabilitation Sciences. 2022;2(2):162-9.

Tahir A, Fatima A, Khan MT. Association of depression in patients with fibromyalgia syndrome. Pakistan Journal of Rehabilitation. 2022;11(1):174-83.

Tahir M, Tariq F, Saeed HW, Nauman M, Usman M, Ali S. Impact of Air Pollution on Respiratory Health of Traffic Wardens in Lahore: Air Pollution and Respiratory Health. The Healer Journal of Physiotherapy and Rehabilitation Sciences. 2023;3(7):703-9.

Wiart L, Ray L, Darrah J, Magill-Evans JJD, rehabilitation. Parents' perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. 2010;32(3):248-58.

Kruijsen-Terpstra AJ, Verschuren O, Ketelaar M, Riedijk L, Gorter JW, Jongmans MJ, et al. Parents’ experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy. 2016;53:314-22.

Kruijsen‐Terpstra AJ, Ketelaar M, Boeije H, Jongmans MJ, Gorter JW, Verheijden J, et al. Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review. 2014;40(6):787-96.

Aydin R, Nur HJTJoPM, Dergisi RTFTvR. Family-centered approach in the management of children with cerebral palsy. 2012;58.

Anttila H, Autti-Rämö I, Suoranta J, Mäkelä M, Malmivaara AJBp. Effectiveness of physical therapy interventions for children with cerebral palsy: a systematic review. 2008;8(1):1-10.

Egilson STJSJoCS. Parent perspectives of therapy services for their children with physical disabilities. 2011;25(2):277-84.

Gunel MJAoett. Rehabilitation of children with cerebral palsy from a physiotherapist’s perspective. 2009;43(2):173-80.

Brandão MB, Oliveira RH, Mancini MCJBJoPT. Functional priorities reported by parents of children with cerebral palsy: contribution to the pediatric rehabilitation process. 2015;18:563-71.

Gibson B, Teachman G, Wright V, Fehlings D, Young N, McKeever PJCc, health, et al. Children's and parents' beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy. 2012;38(1):61-9.

O’Neil ME, Fragala-Pinkham MA, Westcott SL, Martin K, Chiarello LA, Valvano J, et al. Physical therapy clinical management recommendations for children with cerebral palsy-spastic diplegia: achieving functional mobility outcomes. 2006;18(1):49-72.

Hinojosa JJTOTJoR. How mothers of preschool children with cerebral palsy perceive occupational and physical therapists and their influence on family life. 1990;10(3):144-62.

Peplow UC, Carpenter CJP, pediatrics oti. Perceptions of parents of children with cerebral palsy about the relevance of, and adherence to, exercise programs: a qualitative study. 2013;33(3):285-99.

Ketelaar M, Vermeer A, Hart Ht, van Petegem-van Beek E, Helders PJJPt. Effects of a functional therapy program on motor abilities of children with cerebral palsy. 2001;81(9):1534-45.