Effect of Sialorrhea on Quality of Life in Cerebral Palsy Children

Abstract

Background: Sialorrhea, characterized by uncontrollable drooling, is notably prevalent among children with Cerebral Palsy (CP). It emerges as a pathological concern after the age of 4, significantly impairing the quality of life (QoL) due to social stigmatization, perpetual clothing soiling, dehydration risks, speech obstructions, and potential for social withdrawal.

Objective: To quantify the impact of sialorrhea on the QoL of children with CP, as reported by their parents or caregivers.

Methods: Utilizing a cross-sectional study design with convenience sampling, data were gathered from a mix of government and private special education facilities in Lahore and Sialkot. A cohort of 100 CP children, aged between 4 and 12 years, was assessed using the Drooling Impact Scale (DIS) and the Cerebral Palsy Quality of Life Questionnaire for Children (CP-QOL-Child) parent-report version.

Results: The study population had an average age of 7.52 years, ranging from 4 to 12 years. Of the participants, 56 were male (56%) and 44 were female (44%). Analysis of the CP-QOL-Child data indicated that sialorrhea profoundly compromises the QoL in CP children, evidenced by a reduction in scores related to social well-being and acceptance by an average of 37.5%. Furthermore, the children's participation in community and social events showed a significant decline, with average participation rates reported at just 30%.

Conclusion: The study conclusively demonstrates that sialorrhea is associated with a reduced QoL in children with CP. The significant numerical values reflecting poor social integration and lowered activity participation underscore the urgent need for comprehensive management strategies to alleviate the impact of sialorrhea. Enhancing these children's ability to engage in social and communal experiences is imperative for improving their overall QoL.