ASSOCIATION OF CEREBRAL PALSY CHILD BEHAVIOR WITH CAREGIVER STRESS LEVEL
DOI:
https://doi.org/10.61919/jhrr.v1i1.4Keywords:
Cerebral palsy, Parental Stress Scale, Strength Difficulty QuestionnaireAbstract
Background: Cerebral palsy is the most common frequent disability of childhood. Its prevalence in Pakistan is much higher about 2 to 3 out of every 1000 children with CP, which affect the child's functional status of life to a greater extent.
Objective: To determine the association of the Cerebral palsy child's behavior with caregiver's stress level.
Materials and Methods: This was cross sectional study comprised of 159 caregivers of CP child among them 100 were males and 59 were females. This study conducted from December 2016 to May 2017.Convenience sampling technique was used and subjects were selected from different hospitals and rehabilitation centers of Lahore Pakistan on the basis of inclusion and exclusion criteria after taking informed consent. The two standardized “Parental stress scale” and “strength difficulty questionnaire” were used to find out the level of stress and caregiver' burden. The Data was analyzed using SPSS v20. Frequency was calculated to obtain mean values of caregiver stress and behavior of CP child using PSS and SDQ. P value ≤ .05 was considered statistically significant.
Results: The Pearson correlation (r) between PSS and SDQ data was r₌ 0.63 which showed there was a strong positive linear correlation present between our two variables CP child behavior & caregiver stress level. It indicated that both variables increased or decreased together.
Conclusion: The quality of life of the parents of CP child is influenced by their child behavior. The study concluded that there is strong relationship present between the CP child's behaviors with the caregiver’s stress level.
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Sigurdardottir S, Indredavik MS, Eiriksdottir A, Einarsdottir K, Gudmundsson HS, Vik T. Behavioural and emotional symptoms of preschool children with cerebral palsy: a population‐based study. Developmental Medicine & Child Neurology. 2010;52(11):1056-61.
Lee MH, Matthews AK, Park C. Determinants of health-related quality of life among mothers of children with cerebral palsy. Journal of pediatric nursing. 2019;44:1-8.
Wang Y, Huang Z, Kong F. Parenting stress and life satisfaction in mothers of children with cerebral palsy: The mediating effect of social support. Journal of health psychology. 2020;25(3):416-25.
Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and classification of cerebral palsy, April 2005. Developmental Medicine & Child Neurology. 2005;47(08):571-6.
Luo J, Wang M-C, Gao Y, Zeng H, Yang W, Chen W, et al. Refining the parenting stress index–short form (PSI-SF) in Chinese parents. Assessment. 2021;28(2):551-66.
Pinquart M. Parenting stress in caregivers of children with chronic physical condition—A meta‐analysis. Stress and Health. 2018;34(2):197-207.
Kumar R, Lakhiar MA, Lakhair MA. Frequency and Severity of Depression in Mothers of Cerebral Palsy Children. JOURNAL OF THE LIAQUAT UNIVERSITY OF MEDICAL AND HEALTH SCIENCES. 2016;15(3):147-51.
Fanti KA, Eisenbarth H, Goble P, Demetriou C, Kyranides MN, Goodwin D, et al. Psychophysiological activity and reactivity in children and adolescents with conduct problems: A systematic review and meta-analysis. Neuroscience & Biobehavioral Reviews. 2019;100:98-107.
Bourke-Taylor HM, Jane F, Peat J. Healthy mothers healthy families workshop intervention: A preliminary investigation of healthy lifestyle changes for mothers of a child with a disability. Journal of Autism and Developmental Disorders. 2019;49(3):935-49.
Murphy NA, Christian B, Caplin DA, Young PC. The health of caregivers for children with disabilities: caregiver perspectives. Child: care, health and development. 2007;33(2):180-7.
Jess M, Totsika V, Hastings RP. Maternal stress and the functions of positivity in mothers of children with intellectual disability. Journal of Child and Family Studies. 2018;27(11):3753-63.
Fritz H, Sewell-Roberts C. Family stress associated with cerebral palsy. Cerebral palsy. 2020:515-45.
Kuo DZ, Cohen E, Agrawal R, Berry JG, Casey PH. A national profile of caregiver challenges among more medically complex children with special health care needs. Archives of pediatrics & adolescent medicine. 2011;165(11):1020-6.
Lee MH, Matthews AK, Park CG, Vincent C, Hsieh K, Savage TA. Relationships among parenting stress, health‐promoting behaviors, and health‐related quality of life in Korean mothers of children with cerebral palsy. Research in Nursing & Health. 2020;43(6):590-601.
Wijesinghe C, Fonseka P, Hewage C. The development and validation of an instrument to assess caregiver burden in cerebral palsy: caregiver difficulties scale. Ceylon Medical Journal. 2013;58(4).
Irwin L, Jesmont C, Basu A. A systematic review and meta-analysis of the effectiveness of interventions to improve psychological wellbeing in the parents of children withcerebral palsy. Research in Developmental Disabilities. 2019;95:103511.
Ketelaar M, Volman M, Gorter J, Vermeer A. Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Child: care, health and development. 2008;34(6):825-9.
Boztepe H, Çınar S, Ay A, Kerimoğlu Yıldız G, Kılıç C. Predictors of caregiver burden in mothers of children with leukemia and cerebral palsy. Journal of psychosocial oncology. 2019;37(1):69-78.
Pfeifer L, Silva D, Lopes P, Matsukura T, Santos J, Pinto M. Social support provided to caregivers of children with cerebral palsy. Child: care, health and development. 2014;40(3):363-9.
Park E-Y, Nam S-J. Time burden of caring and depression among parents of individuals with cerebral palsy. Disability and rehabilitation. 2019;41(13):1508-13.
Ramita S, Yadav S, Singh U, Sumalatha K. Physical and mental health among caregivers of children with cerebral palsy. Astrocyte. 2016;2(4):167.
Masefield SC, Prady SL, Sheldon TA, Small N, Jarvis S, Pickett KE. The caregiver health effects of caring for young children with developmental disabilities: a meta-analysis. Maternal and child health journal. 2020;24(5):561-74.
Dehghan L, Dalvand H, Feizi A, Samadi SA, Hosseini SA. Quality of life in mothers of children with cerebral palsy: The role of children’s gross motor function. Journal of Child Health Care. 2016;20(1):17-26.
Mostafavi M, Areshtanab H, Ebrahimi H, Vahidi M, Amiri S, Norouzi S. Caregiver burden and related factors in Iranian mothers of children with attention-deficit hyperactivity disorder. Nursing and Midwifery Studies. 2020;9(3):149-56.
Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;114(2):e182-e91.
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Copyright (c) 2021 Hafiz Muhammad Asim Raza, Binash Afzal, Ahmed Ijaz, Muhammad Fiaz
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